Reide

Reide
Easter pictures 2011

Thursday, January 6, 2011

I praised Him in the Storm

I had lots of thoughts today that I don't just want to get lost in my "thought heaven" as most of my thoughts do.....ha, yes, you're lucky, I don't write or SAY everything I think!

Then and Now, Now and Then....there's lots of comparing going on in my mind and in our conversations these days.

Then:  I glanced constantly and frantically into the back seat to check if Reide was retching or had vomited and was choking on it or DEAR GOD, was she finally going to fall to sleep?....
Now:  I glance in the back seat to see a happy baby signing for "more" and I happily hand her another puff or melt.

Then:  We spent our evenings washing feed storage bottles, washing feeding extensions, washing syringes, calculating intake, calculating calories, making lists of what doctors to call and what we needed from who.
Now:  After quickly loading the days bowls and spoons into the dishwasher, we spend our evenings casually surfing the internet, catching up on TiVo shows, talking about vacations, houses, progress.....OMG, did I just say we spend time TALKING, yes, I did.  How nice to have some normalcy!

Then:  We cleaned up puke multiple times a day or cleaned up spillage from venting during a retching episode.
Now:  We clean up food  bits and sippy cup drips.

Then:  We spent 2 hours every 3 nights making blends.  Very meticulous, very time consuming, very precise, very messy.  (But the blends were part of the key to our weaning success.)
Now:  We spend a couple of minutes getting Reide's real food ready for daycare tomorrow.

Then:  We got reports from Reide's teachers on "how she tolerated her feeds".
Now:  We get "how she ate today" reports.  (And todays report included that I didn't send ENOUGH food for her....she ate everything I sent and more!)

Then:  I cried in the car on the way to work because I'd left Reide at school when I knew feeds weren't going well and she needed her Mommy.
Now:  I leave Reide in the feeding table at school eating mandarin oranges and listen to music on the way to work.

I could go on and on, but I'll save you from myself.  :-)  I praised Him in the storm of our lives and I gave thanks and praise for the little girl that God gave to us and likewise, I thanked him for giving us to her.  There were times when my ears literally hurt from trying to hear the whisper of hope that I knew was there; family turning against us, talking behind our backs and friends abandoning us was so loud but the whisper, it was always there.  Hindsight has been no clearer than as we were in the trenches and I know who that clarity came from.  The peace of knowing that we weren't walking alone but that for every one of our footprints, there was one of His beside us and for certain, like on June 15, 2010, times where there was only one set of footprints because we were being carried.  I praised Him in the storm and He gave me clarity, peace, determination and now, appreciation.  For the rest of our lives, we will be part of a small, scarce community of tubers whose best resource is each other but our best guide continues to be God to whom I'm so very grateful for the Now and the Then.


 Praise You in the Storm by Casting Crowns:

I was sure by now,God, that You would have reached down 
and wiped our tears away, 
stepped in and saved the day. 
But once again, I say amen 
and it's still raining 
as the thunder rolls 
I barely hear You whisper through the rain, 
"I'm with you"
and as Your mercy falls 
I raise my hands and praise 
the God who gives and takes away. 

Chorus: 
And I'll praise you in this storm 
and I will lift my hands 
for You are who You are 
no matter where I am 
and every tear I've cried 
You hold in your hand 
You never left my side 
and though my heart is torn 
I will praise You in this storm 

I remember when I stumbled in the wind 
You heard my cry to You
and raised me up again 
my strength is almost gone how can I carry on 
if I can't find You 
and as the thunder rolls 
I barely hear You whisper through the rain 
"I'm with you"
and as Your mercy falls 
I raise my hands and praise 
the God who gives and takes away 

Chorus 

I lift my eyes onto the hills 
where does my help come from? 
My help comes from the Lord, the maker of heaven and earth 
I lift my eyes onto the hills 
where does my help come from? 
My help comes from the Lord, the maker of heaven and earth 





3 comments:

  1. Love it! Awesome! Beautiful! Brought tears to my eyes! That is all I can say!

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  2. I've been following your daughter's wean, I think I first saw you on the Blenderized diet group....so awesome to hear! I am so happy and so hopeful! I started cutting my daughter's calories on Monday, she's at 50% today and no signs of hunger so far. I'm a little nervous about cutting further since my plan was just to see what she would do with a little calorie reduction. Your story gives me hope! Thank you for sharing!

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  3. oh leslie, i am SO HAPPY in more ways than words can say. just know, mother to mother, that reading your words has made my day. i am over the moon for you guys! and your format of then and now is such an amazing illustration of how much time/emotion/thought tube feeding takes.

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